Sunday, September 16, 2012

Employment for People with Asperger's Syndrome or High-Level Autism

For almost three hours yesterday, I gave a talk on jobs and attempted to answer questions at a meeting of about 50 adults with Asperger's Syndrome or high-level autism, their parents, counselors, job coaches, and advocates.

Media portrayals had led me to view Aspies (that's what they like to be called) as little different than the typical computer geek. My experience yesterday changed that. I found most of the 50 people to have anomalies severe enough to make it unlikely they could find stable employment in today's job market except perhaps doing structured low-level work in isolation. One person couldn't remember his name. Another said he was so exhausted at a job interview trying to appear normal, that he "was useless for three days."  I was exhausted after interacting with them. And it wasn't their lack of eye contact or that sometimes, their bodies or arms were contorted. I quickly got used to that. While some Aspies were quite logical and easy to follow, many were not. One slipped into some mystical foreign language mid-sentence. While some were polite, others were demanding of "my rights to more services," blaming their beleaguered parents, the schools, and society. I was warned that I better call non-aspies, not "normal" but "neurotypical." And their behavior was in a non-threatening, non-demanding, distraction-free context: a support group meeting. I can only imagine what they'd be like in the workplace.
Note: All these photos have been previously published

I spoke at length with two of their advocates who have been working with Aspies for two decades. They said that despite massive effort, 90+% are unemployed. "It's pulling teeth just to get them a job pushing shopping carts out to the car. And even if you finally get them a job, they're often quickly fired. I mean, it's sometimes hard just to keep them from flapping their arms like a bird." (That's a self-soothing behavior common among Aspies.)

One of their leaders mentioned that both the federal and state governments have programs that give preference to disabled job applicants. A job developer said, "That's great!." No one disagreed...except me. I asked, "Imagine you owned a business or ran a government agency or nonprofit and you were forced to give preference in hiring to someone with Asperger's/Autism or other such disability? Is that fair to you? To other candidates for the job? To the coworkers? To your customers? To the viability of your business? I thought but did not say, "Beyond preferences given to the disabled, because of the Justice Department's increased used of the Disparate Impact legal theory, if an employer doesn't employ a proportionate percentage of the long-term unemployed or ex-felons, it's evidence that can trigger a discrimination lawsuit. Isn't that, along with the other heavy costs that government imposes on employers (most recently ObamaCare) a major reason it's a jobless non-recovery?"


But I digress. If I had an adult child with Asperger's/high-level autism, I'd try to employ him myself. I'd be able to accommodate to his needs to a far greater extent than would most employers.

If I couldn't, I'd probably try to find him sheltered employment rather than try to help him land a job in the competitive job market. For the reasons I mentioned above, I'd feel unfair to employers teaching an Aspie the job-search strategies that make him look better than he is. After an employer would hire him, s/he'd soon find out what he's really like but he'd then have additional rights under the Americans with Disabilities Act so the employer would have a hard time firing him.


At the end of my presentation, a number of parents asked me to help their Aspie/Autistic adult child find a job. I felt guilty but ethical in turning them down.

9 comments:

Robert said...

"While some were polite, others were demanding of 'my rights to more services.' They blamed their parents, the schools, and society."

From this description of their mindset, it sounds as if they have great futures in politics! (And no, I am not joking.)

Maria Lopez said...

They do not have a future in politics. It is very difficult for them to stay on track and focused on the real world.

All people with an autistic spectrum disorder will have trouble focusing on the task at hand. They can easily be taken off track by fantasies or anxieties or interesting pictures or pieces of garbage.

They have strengths, namely good memories, and an ability to sometimes do what the child did in the story "The Emperor Has No Clothes."

Their frequent anger at parents is understandable as parents are often trying to get them to be normal. This can be really hard since they often have to think exhaustively about what they are doing to be able to appear at all normal and all their efforts can come to nought the moment they experience one surprise or distraction.

Computer geeks do often have autistic traits but not at a disabling level.

Anonymous said...

This is heartbreaking -- for the people with the disease, their families and society. I don't find anything funny about it. We are a feeble species in the face of our problems. So much is out of our control that the feeling of control is pure illusion.

Aric John said...

Absolutely true, don't make fun of others especially those who are suffering from such diseases. Because anyone can be affected by Aspergers syndrome. Instead of making fun we should encourage them to make them self-dependent.

Anonymous said...

Software testing requires imagination to simulate the experience real people would have while using the software.

It involves auditing usability and user interface of the software under various scenarios.

It is more heuristic than mechanistic.


-- Pooja Joshi

Anonymous said...

This was unpleasanat to read. It sounds like the blogger doesn't understand or believe in the ADA, or the DOJ,for that matter. He seems to think the ADA is about giving unfair preferences to the undeserving -- and wouldn't that be unfair to the "normals"? (That's the word the blogger so desperately wanted to use, but the evil tyrannical autistic people stole his free speech for a whole three hours!)

It's called a spectrum. The degree of functioning varies across a range. Yeah, some people are the absent-minded professor types you expected to see. Others are different, and some have -- just like "normal" people -- other diagnoses and issues going on at the same time. Maybe that's what you saw at the meeting, I don't know. But the ADA just means that if all it takes for the employee to keep the job is for the employer to make a reasonable accommodation, then the employer has to make it. Not unreasonable ones, reasonable ones. George Bush signed the darned thing, so it's hardly socialism.

Depressing blog. Hope other people in this profession are more enlightened.

Anonymous said...

I've seen a few comments saying that AS is a disease. Well, they should look up the definition on Google or something. In my opinion, this article was very true. I agree very much with it. But I agree, it is hard to stay focused, depending on the person or thing I'm supposed to be focused on. And yes, I have Aspergers.

Anonymous said...

I was diagnosed with Asperger's last month, but I'd suspected for years that I had it. I'm on the higher-functioning end of the spectrum.

I guess I'm one of the 10% of Aspies fortunate enough to have had stable employment (at the same location for nearly 6 years now). I even earned a promotion during that time. It wasn't always this easy. In one of my previous jobs, I was almost fired because of my treatment of customers. Twice. Even though I ended up keeping the job for 8 years, I never did customer service as well as the others.

I have not disclosed my diagnosis to my employers or to anybody else (except a trusted friend), and I'm not sure I want to. I've managed to support myself without the intervention of the ADA, so let that serve employees who truly need it. Besides, I'd rather be hired because of what I can do on my own, not to fill a quota.

Even though I struggle with some things more than others as a result of my AS, I'd like to think that my efforts to overcome my struggles are part of what makes me the person I am today.

Like the previous commenter, I too have issues with focus, unless it is a topic I am very interested in. One of the goals I hope to accomplish this year is to develop my focus so that I can use it on any topic that needs my attention, not just the ones I find most interesting. If I can do that, that is yet another obstacle overcome. And I know that may not do it. It may be, like social skills, something I improve but never do quite as well as most. But I can try.

Marty Nemko said...

Your comment is extremely thoughtful and gives me good reason for optimism that you will make real progress.

 

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